Most of you may not know this but our 15 year old son, Nick, was diagnosed at an early age as being high functioning autistic. My wife, Janice, has recently set out on a mission to create a charity here in Vancouver Washington in Nick's name for Nick and other children who suffer from this terrible condition.
One of the many challenges that children like Nick suffer with is that they find it very difficult to socialize with other kids. Because of this, they are often paralyzed with fear when being put into social situations with people who they don't know. Janice's idea is to have a local place where autistic children can come to socialize, play, and to just be themselves. This recreational center, of sorts, would be a free and safe place for them to come and just hang out for a while. They will be free to just be themselves. They would gain valuable experience in life skills that you and I take for granted.
Janice is out of the office right now and I just left this note for her on her computer. The following 7 tips are loosely taken from a keynote speech by Kevin Carroll that we were able to attend a few weeks back at the Keller Williams Family Reunion.
Nick's Pad - A Plan
1.Commit to it- Your desire must come from deep within.
2.Seek out encouragers- Sustaining your life's work cannot be done alone. You must build relationships with people who have genuine interest in you and appreciate you commitment.
3. Workout your creative muscle - Pursuing your life's work requires constant creativity because the path will not always be obvious.
4. Prepare to shine - Each day is an opportunity to live out your life's work. Take advantage of it.
5. Speak up! - Never accept boundaries imposed on you by others. Don't let anyone hold you back.
6. Expect the unexpected - Some days there will be setbacks. Other days will present windfalls and opportunities that will further your cause. Watch for them and take advantage of them.
7.Maximize the day - Each day contains 86,400 seconds. That is 86,400 opportunities to make a difference. Don't waste any of them!
So why am I posting this? I am hoping to call on my Active Rain friends, associates, and mentors for help and guidance. Although we both volunteer for many charity foundations and events, we have no experience organizing and launching such an endeavor.
What kind of attorney will she need to set this up in order to operate within the law and to be a completely legit charity? Do you know anyone who may be willing to take on this project pro bono or really really cheap?
Is anyone aware of any advocacy groups for autistic children who may have grant money or support for a project like this?
Any tips, guidance, or advice is greatly appreciated. Of course once we are set up and able to accept them, donations (LARGE and small)will be greatly appreciated.
I know that times are tough for everyone in the real estate industry right now and I want you to know that help and guidance is currently more valuable to us than money.
Thank you in advance and wish us luck!
Mark Hall
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Best wishes with this valuable endeavor. What a great tribute this will be to your son.
My husband and I set up a charity after my best friend died. I would be happy to talk to you any time. The IRS website has great info about how to set up the charitable foundation. Good luck and keep us posted on how it's going.
WOW Mark I am so sorry and a very strong felt post and keep us updated my friend!
VB o)
Mark, this is going to help a lot of kids as well as Nick. I can't help you with this but wish you the best of luck.
Non profit 501C status needed for fund raising.
Hi Mark - What a beautiful thing you are doing! This hang out spot sounds like a GREAT idea! I would check in w/other autism groups, either on line or in real life, and see if they have any ideas re how to set this up....my guess is there are bound to be helpful contacts!
I would also check with your local Children's Hospital (is your closest one Oregon Health Science University?) Same premise...I would track down the right dept.....even check in with the OT people.....see if they can provide any direction/guidance.
Wish I had a name for you to contact but nobody's coming to mind....but if I were you that's where I would start. Good luck!
Best wishes to you in setting up your charity. Loved your reference to Kevin Carroll. Family Reunion was awesome. I have been involved with setting up a couple of charities and we did it ourselves without an attorney. I'm betting that if you can do short sales and deal with all the details that the banks want, you can fill out the IRS forms for a 501c3 corporation and tax exemption status. Check out the guidelines and you may find out that you and your wife would have to answer the questions anyway. You can always have an attorney review your process and give you a legal stamp of approval. Another thing you may want to consider is whether you have a community foundation that could administer it for you. I know that Kansas City has a community foundation and we also have a Christian foundation that will help you set up a fund and administer a Christian charity. Feel free to email me if you would like more information from me. Certainly don't have all the answers, but I'm willing to share what I do know.
Wow. So much great information and so quickly! I think that this is a strong testament to how tight the AR family really is! Thank you everyone. Keep the ideas coming and I will update you as we move forward.
Mark - best of luck in seeing your dream being a reality. It sounds like such a worthwhile cause. Keep us posted on your success.
What a wonderful thing you guys are doing. I don't have any advice regarding the legalities, but would like to offer this... please have some friendly animals for the kids, like cats and dogs, which help them to open up and bond with others. Even if they don't socialize with people, socializing with animals is a good way to get them more comfortable and interacting.